Showing posts with label PCOS. Show all posts
Showing posts with label PCOS. Show all posts

Tuesday, July 07, 2009

Hear me rawr

If you know me at all, you know that I am not an overt feminist. Some might assume that I am not a feminist at all.

Well, you'd be wrong.

While not a supporter of many of the agendas of the feminist movement, I do believe that women are meant to enjoy the same opportunities that men do -- when that is logical. Women are equally deserving of good jobs, quality educations, and sound medical care, just like their male counterparts. But this may not mean we are entitled to always enjoy the same opportunities because, in case you hadn't noticed?

We are wildly different creatures. And for that I say Amen. Different is amazing, and interesting, and beautiful, and quite literally life-giving.

This isn't really a post about equal rights. This is about about equal access to something vital to the well-being of women everywhere: sound medical care.

Probably because of our historically male-driven paradigm (men work/men provide/men lead/men protect/etc), a lot of medical research is conducted with men in mind. Or, maybe more accurately, with men as the primary source from which data is collected. Heart disease, for example, manifests itself quite differently in a woman than it does in a man -- but in the past most public education campaigns were designed around the classic symptoms found in men, as most research had typically been done on the male population. I don't believe this was deliberate, just an unfortunate outcome of an outdated mindset.

The good news? The medical community seems to be catching on to this. Women's health is being discussed in many outlets and researchers are casting a wider net, looking for clues to the genesis - and cures - for disease in both men and women.

But I'm here to tell you, we still have a long way to go. I know this because I'm experiencing the imbalance myself.

I'm not sure when I first heard about PCOS, or polycystic ovary syndrome. I know the first time I ever heard a doctor mention it to me was more or less in passing, as she went over the results of a rather lengthy history I had provided. Buried between the meatier topics of obesity and diabetes risks was a quick castoff, a mention that I had all the classic signs of PCOS -- fun stuff, like being overweight, having irregular periods, oily skin, unwanted facial hair -- and so I probably had that as well. That was it.

A few months later I had a miscarriage.

Soon after that, in a discussion about insulin resistance, I was put on Metformin. It was explained to me that this would help my body overcome the insulin resistance, thereby helping me achieve better weight loss results. The side effects could be unpleasant (and yes, they can be) but we should give it a go. And so we did.

Never one to shy away from the internet for more information, I started doing some searches on this new medication I was taking. It didn't take long before I saw that it was frequently prescribed for women with PCOS -- and hadn't I been told I probably had that, too? With a little more digging I found that Metformin was known to help women with PCOS get pregnant. Get pregnant, and stay pregnant.

That's when I knew that there was no "probably" about it. I really had this thing, this PCOS. And I had likely lost a baby because of it. And nobody told me it might happen.

Happily, I got pregnant again -- thanks to that Metformin, I have no doubt -- and had a beautiful, healthy baby girl. Perhaps I've mentioned her before?

So life went on. I lost more weight. Then I lost my mother, and my father, and most of my resolve, and the weight soon returned. I continued to see my doctors, an ob-gyn and a new internist, and I always brought up PCOS. Not really knowing what to ask, I would tell them that another doctor told me I probably had it. And in lock-step, each doctor would shrug, say yes you probably do, and there's little you can do about it. Eat right. Exercise. Lose weight. Next question.

And I know that their answers were correct. Correct, but not complete.

I'm learning that PCOS, obviously unique to women, is a parallel to something the medical community calls Syndrome X, a high-insulin metabolic state. While my primary concern with PCOS arose from infertility, some recent reading has also taught me that PCOS, like Syndrome X, can lead to diabetes, high blood pressure, and cardiovascular problems. Additionally, because PCOS effects the hormonal function of the ovaries, women with chronic and/or severe cases are also at risk for ruptured cysts, ovarian twisting, internal bleeding, endometriosis, endometrial hyperplasia, and endometrial cancer.

An increased risk for cancer. There's absolutely nothing that terrifies me more.

I think that's worth more than a shrug and a passing comment, don't you? Three doctors -- three female doctors -- never told me any of this. Maybe they didn't know. But they should, and now I do.

Look, I'm not going to lie: Losing weight and getting pregnant were big motivators for learning more about this thing, and they are still big motivators for trying to overcome it. But the more I learn the more I realize that there is more at stake here than dropping a few dress sizes and having another baby. There is my life, and growing old with Rob and raising Sara.

Why didn't they tell me? I don't suppose it matters now. What matters is that I don't let them off the hook so easily in the future. I know better what to ask, and who to seek if they can't provide the answers.

Because I'm a woman. And I deserve that kind of healthcare.

[[RAWR]]

Thursday, June 18, 2009

Enough with the pregnant

Four people from work
Two old friends
Three announcements in past two weeks

And no, I'm not.

Monday, June 01, 2009

To Whom It May Concern:

Dear person who doesn't know me that well:

I realize that making small-talk is the socially acceptable thing to do, and I want you to know -- I don't mind small talk. In fact, I appreciate your effort.

But I'd also like to let you know that while asking about my preschooler is a perfectly delightful way to engage in said small talk, asking me if I'm "going to have another" is not. In fact, that kind of conversation is entirely the opposite of "small talk;" it is (I would dare say) rather "large talk." This question, much like asking the mother of multiples if she underwent fertility or the soon-to-be mother if she's had that baby yet, is better left unasked.

You see, the answer to the question is not simple. I could say no, and then you might ask why -- and again, the answer to that falls squarely under the umbrella of "large talk." Or I could say yes, and you might ask when -- but I think filling you in on those kinds of details might be considered "too much information." Or I could say I would love to, and we've tried, and I really want my daughter to have a sister or brother more than anything in the world but after three years it's beginning to look more & more like that may never happen --

But that answer might leave you feeling awkward, which really defeats the point of "small talk."

Don't get me wrong, I'm not angry or anything. And it's certainly not your fault because it's a question that dozens before you have asked as well. Somehow, somewhere along the line, society decided that it was alright to make these kinds of casual inquiries -- probably right about the same time we started watching The Real World and Big Brother and Jon & Kate + Eight, learning much more about perfect strangers than we ever had a right to know.

So let's make a deal, OK? You don't ask if we're going to have another, and I won't lie & say "oh, I don't know, maybe sometime, we'll just have to see..."

Because lies are not "small talk," they are "false talk." And I'm just not in to that sort of thing.

Thanks for your consideration.

Sincerely,
Sara's mom